Sickle Cell Diaries

How I Score My Level of Sickle Cell Pain | Sickle Cell Diaries

Sometimes you need to let others know how severe your sickle cell pain is, particularly if you are in Hospital. I seldom get pains that require me to be be hospitalised, which works great for me as I prefer to treat my pain as much as I can before seeking any kind of help. However, I do get many aches and pains throughout the week that come and go, and these pains range from low to high in severity. As I've started keeping a pain diary to show my consultant, I've come up with a scoring ...
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The Benefits of Keeping A Pain Diary | Sickle Cell Diaries

Over the past 7 months, I've maintained a full-time job assignment that required me to travel by train 5-days a week. To most people this is normal, but for a sickle cell sufferer it can be a nightmare. I was constantly aching, and I was always tired. The worst part was that I stopped taking painkillers to manage my pain because they would make me too drowsy at work and have me on the brink of falling asleep. Back in March I had an appointment with my consultant at the Hospital and ...
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My Top Coping Mechanisms When Suffering From Sickle Cell Crisis

Fellow Sickle Cell sufferers know that there's nothing worse than suffering pain so bad that you can barely move. It gets to the point where it even effects our breathing, and once it gets to that point there's nothing else for us to do but get dosed up on painkillers and try to get comfortable in bed (whether it be at home or the hospital). It's a process I've been through a lot in my life, and it seems to get worse every time. However, to take my mind off things I have a list of coping ...
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I Attended the Sickle Cell Society AGM

On Saturday the 18th July I attended the annual Sickle Cell Society AGM. I was invited to attend by a family friend who also suffers from Sickle Cell disease. I'd never been to one of these events before so I wasn't sure what to expect, but I came out of it feeling very positive. I discovered that there are many more sufferers out there going through the exact issues that I deal with. During the Q&A session it became clear just how much support for Sickle Cell is needed across the country. ...
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The Sickle Cell Diaries: My Crisis 2015

For the past month and change I have been suffering from a severe sickle cell crisis. It seems the timing for me starting these diaries was spot on, because now I have the perfect way to document my experience. Until now I hadn't been hospitalised since January 2011. For the past few years I had been dealing with my crisis pains at home, with medication, but as I learned this time, that could be extremely dangerous. I was in the hospital for three weeks, and my crisis actually lead to me ...
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